What we do

We start with support, and let the evidence build over time.

Two connected parts: an app that helps families where they are, and a research engine that turns what they share, with consent, into evidence organizations can act on.

1Support first

The StoryCatch App

One app where the family starts: capturing what really happens day to day, and seeing it organized. Peer circles and guidance are built in from there.

  • Day-to-day capture, organized
  • Peer circles
  • Built-in guidance

Offered through the foundations and health organizations that already serve families.

2Evidence over time

StoryCatch Insights

With consent, what families share becomes de-identified, longitudinal data that shows how families are doing, and what is working.

  • Baselines
  • Outcome reporting
  • Condition-specific registries, over time

Consent-based and de-identified, from the first share.

How it comes together

  1. A family is invitedthrough an organization they already trust.
  2. They capture what happensday to day, and see it organized.
  3. They find supportin peer circles and built-in guidance.
  4. They choose to sharewith consent, de-identified from the start.
  5. Evidence buildsinto baselines and outcome reports.
  6. Care improvesas organizations learn what works.

And the next family is better supported than the last.

Built on a proven engine

Fifteen years of real-world evidence, already at work.

StoryCatch Insights

StoryCatch Insights, formerly EmpiraMed, is our research and technology division. Its team has run multilingual, global clinical trials and longitudinal registries, designed around participants’ lives so they keep taking part for years.

That same engine is what turns what families share into baselines, outcome reporting and registries.

Visit StoryCatch Insights
15years of real-world evidence
95%annual participant retention
The InsightArc Suite™Connected apps for participants, caregivers and study sites, on one compliant platform.

For foundations and organizations that serve families

Let’s talk about one program and one population you care about.

Talk with us